gamma knife

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News

Last week I was informed by my neurosurgeon (I asked) that with no further treatment I have 3-6 months left.

Lots of tears. Aaand on to the next procedure. I had the open-brain surgery last month which has left me with a very uncoordinated left hand. So now I’m keyboarding with one hand which is a major annoyance when you’re used to using both hands.

But of course that’s the least of it all. I still have a tumor in my cerebellum. The med team is going to laser it tomorrow morning (Gamma knife again) to try to buy me more time. Cliff has been a gem through all this — so supportive — and of course it’s always hard on everyone, including my two wonderful kids. It’s just way life goes sometimes. At least I got to marry a fine man and raise my children and live in this beautiful world.

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About six weeks ago, I didn’t think I would be able to live out the year. I learned that I have at least two more metastases in my cerebellum, in the balance & coordination area.

Then I suddenly began throwing up and couldn’t stand upright. I drove to the oncologist for rehydration, and they wheeled me right over to the hospital and checked me in.

There is no cancer showing up in my body now, only in my cerebellum. It’s unusual enough that the med team was concerned it was a new kind of cancer. They are reluctant to go through healthy brain tissue to take a biopsy, but a biopsy is the only way they’ll know what kind of cancer it really is. Because of the risks to my motor skills (vroom vroom), they are going on the data they have, which is of course colon cancer.

It seems that a tumor or else some edemic necrotic tissue (from the gamma knife surgery last year) was pressing on my cerebellum, causing the symptoms. After four days in the hospital and a high dose of steroids to reduce the swelling, I was released. Hurray.

I’ll have another brain MRI this Thursday, then meet with a second neurosurgeon the following Tuesday. After that, I will have some kind of brain procedure (probably gamma knife again) to kill the tumors.

I’ll get some time to recover from that, which may involve some PT, and then I’ll be starting some chemo. It won’t be hard and heavy chemo, as I had before (twelve rounds every two weeks for six months). This time I’ll have a couple of rounds, then be allowed to recuperate, then a couple more rounds, etc. — more sporadic. The med team thinks the cancer is lurking in my body on a microscopic (i.e., non-tumor-size) level, and they want to go after it.

All this recent news made my husband, children, and me very somber at first. I wasn’t weepy, but of course none of this is good news.

But we are working through it and treasuring our time together, and now I am feeling remarkably peaceful about it all. I am painting, cooking new recipes, hiking, doing yoga again, enjoying my family and three loving pets, and I’m even doing a little knitting, now that our golden is a year old and not such a terror with yarn.

Regardless of our circumstances, there is always so much to be grateful for. I have wept many tears on our back patio, which is sort of a sanctuary for me. But recently just standing out there and taking some deep breaths of fresh, crisp winter air feels healing to me. It seems to clear my head and give me hope.

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Lasering of the brain

Doing fine after the gamma knife laser surgery on my brain. I even have some super-flattering photos to share.

Here I am with three ponytails (one’s in the back) just to make me look extra cute. Okay, it’s really so the surgeon can screw the frame into my head where the hair is parted without having to go through hair or shave any of it off. You can see the two front screws going into my forehead.

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Here they have put a dome on my head. I don’t remember why, but I guess it was necessary at the time.

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The goofy smiles are because you’re always supposed to smile for the camera, right? And I was on some meds….

This photo is after the procedure. They put me in a hospital bed and fed me…a big magenta flower? I don’t remember the flower. I probably ate it.

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My neurosurgeon and a physicist monitored the whole procedure. The physicist checked in on me all the time, very comforting. They were very pleased and said they were confident it was a success. The MRI in July will give them more data about the results.

The nodule was in the balance area of my cerebellum, and I have had no balance problems since the procedure.

Today is my brother’s birthday. Happy birthday, Doug!

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Apparently there is a colon cancer metastasis in my brain about 1cm in diameter, and it is growing. The news was hard to hear. I was sent to a neurosurgeon for a plan of action.

Sooo, tomorrow I go in for gamma knife brain surgery. No cutting, just lots of laser beams aimed into my head, killing whatever is at their point of intersection — in this case, the metastasis in my cerebellum.

I will be able to go home the same day. Brain surgery has come a long way.

On a happier note, we are adjusting to a new puppy in our household. Molly is a ten-week-old golden retriever. She joins Jesse the bichon and Romi the cat. The housetraining is a pain, but she has given us many laughs during the two weeks we have had her.

Molly and pals

Molly and pals

Our cat likes dogs, so that adjustment has been smooth. Jesse the bichon was not too sure about Molly for a while but is playing with her now.

Also fun: Cliff and I just got back from visiting the elementary school where our daughter teaches art. They are having an all-school art show this evening, and we were very impressed with the kids’ artwork. Our son showed up too, so the family was all together.

On brain surgery eve, all is well in our household. And Romi the cat is at the keyboard, supervising my writing.

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