colonoscopy

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Sometimes people are so sure that if they eat this berry or that concoction daily that they will never get cancer. They forget that the newspaper articles say these things “may help prevent cancer.” They don’t prevent cancer. But they do give us an illusion of control.

Unfortunately, sometimes people get cancer regardless of what they do or don’t do.

I have eaten organic blueberries for breakfast every morning for many, many years. I have eaten well in general — broccoli, cauliflower, very little red meat — and am at a good weight. Got my colonoscopy on time at age 50. Was diagnosed with stage I colon cancer at age 53. Was under an oncologist’s care for three years with regular scans and annual colonoscopies, then was diagnosed with stage IV three years after the first diagnosis. Two major surgeries, brain laser surgery, and twelve rounds of chemo in all.

Sometimes things just happen, no matter how careful you are. People in their late teens and early twenties get colon cancer. Young parents get colon cancer. Runners get colon cancer. Sometimes it happens.

I wonder what causes colon cancer to all different kinds of people. No one in my family has had colon cancer. I hope that medical researchers discover the cure someday for this disease — cancer — that brings so much heartache and loss to families.

I have been blessed to raise my children to adulthood, and I am not afraid of death except that I don’t want to leave my family. But things just happen, accidents happen, illnesses happen, and life can seem very fragile sometimes.

I am an ordained minister — have a seminary master’s degree — and, oddly, I believe there is usually no sense as to who gets cancer and who doesn’t. We are all in vulnerable bodies. We think we have control — eat this, don’t eat that, do this and not that — and a certain amount of that kind of thinking is good. We don’t want to ask for trouble in our bodies by neglecting our health.

But sometimes things just happen to our vulnerable bodies no matter how well we take care of ourselves, and all we can do is manage the best we can and pray for the grace to move through what lies ahead with dignity … and to be immensely grateful for family and friends and the moments that we do have.

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Painting

I took up painting over a year ago, then stopped during the summer of 08. In June 08 I was diagnosed with stage IV cancer and underwent surgery. Chemo in the fall and winter. Then during chemo I picked up art again and began learning in earnest.

Since people have asked to see what I do, I’ll post my work here now and then. I don’t have a particular style yet, as you will see; I’m all over the map. I’m drawn to abstract art, but so far I haven’t done much of that. Anyway, I’m so enjoying the challenges that I encounter in art.

I am just learning…about creativity, about process, about art in general. I love looking at other artists’ work. I absorb so much, and I enjoy seeing how they used color (or didn’t use it) and how they decided to compose the painting.

During my sixth colonoscopy earlier this month, my surgeon removed a flat polyp. No cancer, though! He’s keeping a close watch, and I am still on an annual colonoscopy schedule.

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Sixth colonoscopy

I have an appointment with my colon surgeon tomorrow. I am due for my annual colonoscopy. My first colon cancer spread to my lungs, and the doc says that I can always get new cancers, thus the yearly colonoscopy. Tomorrow he will give me the prescription for the prep and we’ll make an appt for the colonoscopy.

I have had five colonoscopies. One year I messed up the prep instructions, and the colonoscopy actually had to be rescheduled. I would rather not have that happen again; it’s pretty embarrassing not to be able to follow basic instructions.

So my sixth colonoscopy draws near. I’m not ready for this prep, not when I’m still dealing with the effects of my second bout with shingles. I was in the hospital for three days last week, sick, in pain, and throwing up. It would be nice to have a little respite before I have to deal with the nausea of the colonoscopy prep.

I should be valuing the colonoscopy because it means early detection. But I dutifully had a colonoscopy in 2002, and it was clear. Either the doctor (not my current surgeon) didn’t see the cancer or it hadn’t begun yet, because in 2005 I was diagnosed with stage I colon cancer. Then, even with annual colonoscopies and PET/CT scans every three months, I was diagnosed with stage IV colon cancer in 2008.

I feel like I should be cancer-free. I have been the poster-child for getting tested and being proactive. But still I got colon cancer, and still it progressed to stage IV.

So although I’m very grateful to have health care that covers colonoscopies, I have mixed feelings about actually having them. I have to deal with this anger and sadness every year. I did what I was supposed to do, and it didn’t matter.

Many of us have this story, whether at home or at work. We feel like we fell through the cracks somehow, and we feel alone. Of course, we are not.

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Midway

I’m halfway through chemo – six rounds done, six to go. I should be wrapping chemo up around January 2009.

In the meantime, I am prepping today for a colonoscopy tomorrow. The oncologist told me just because we’ve taken care of one malignant site doesn’t mean there might not be more in there. So tomorrow morning my surgeon will take a good look at my insides again.

I am truly grateful for good health care and for alert physicians. But having a colonoscopy during chemo is a little tough. I am feeling the cumulative effects of chemo now – some loss of balance, shakiness, fatigue, and the ever-present neuropathy in hands and mouth. Today I am fasting and will be drinking the vat of liquid this evening for internal cleansing, which will leave me even shakier.

Oh, and a mammogram on Friday. I know these tests all vitally important. That’s why I’m having them done.

Still . . . all I want to do is curl up in bed and rest, so I will do that this afternoon. Weariness and gratitude coexist here.

Outside my window, the temperature is dropping and the wind is up. Leaves are sailing off the trees like snow.

And now thunder is booming. Lovely.

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