Moments

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CT eve

It’s been a good week, although I’ve needed to keep reminding myself to breathe and be peaceful. My CT scan is tomorrow morning. Hopefully, I’ll know the results on Friday afternoon.

Because I felt better about the scan, I was able to enjoy a hike on Saturday with Cliff, and we went for a bike ride on Sunday. When I do those kinds of things, I’m exhausted for the rest of the day. But it’s so wonderful to exercise outside that it’s worth it.

I’ve been doing rough sketches this past week. I took a long fireplace-style matchstick and dipped it in ink and drew with it. It’s hard to control but certainly loosens you up! I sat on a blanket on the lawn in the shade, nestled the ink bottle in among the grass blades, and drew. Nice way to spend part of the afternoon.

The cat is asleep on my forearms as I type, so I’ll quit now, as this is getting uncomfortable (although the cat is snoozing quite comfortably — his head bobs up and down as I type).

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Chemo completed

cpmd-cabbage-104Source of my peace
   Spring of my joy
As always, I find your presence
   within myself
      and drink deeply of your hope.

Listening within, waiting, I have regained hope and happiness. Life is different now, to be sure, but again I reach into myself and the tranquility that has been worked within me over the years, and I rest in this sacred dwelling pace for love and peace.

Today—well, yesterday now, as it is 2:40am on Friday—I finished my twelfth and final round of chemo. I am so happy.  No more tubes and pumps, at least for a while. As the fatigue wears off, I will be able to start exercising, in earnest this time. “Listen to your body!”  the oncologists emphasize. I will listen, I promise.

But it’s hiking again, back to the gym and the elliptical, long walks with the dog as weather permits (and it often does), walks interspersed with race-walking (approved by the oncologists), and bicycling (with Cliff, in case of balance mishap).

It will be a couple of weeks—as this weeks’ chemo runs its two-week course—before I do much.  Still, it’s exciting to think about and start working up to day by day.

Thank you ALL for your support!!!!!  And thank you, my heartlings — Joanna’s and Evan’s friends — including Douglas in Paraguay.

Well of joy, spring forth!

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Kindness

Yesterday Cliff and I were at Petsmart choosing a little Christmas toy for our dog. Cliff wandered off toward the dog treat aisle.

I stayed up front, squatted down to look at an item on the lower rack, then lost my balance. I put out my arm to catch myself, but I didn’t have enough arm strength or leg strength to stop my fall. I rolled to the floor on my back in my winter jacket, sort of slowly, helplessly.

I am beyond being embarrassed these days. My body does not seem to be my own anymore.

A young clerk hurried over and helped me up. I thanked him, told him I was on chemo and a little weak. He said his grandfather finished chemo and it seems to have cured his cancer.

It was kind of him to share that. He didn’t make a big deal of anything – just talked for a moment to make sure I was okay.

It’s hard to get used to being weaker when I’ve always been strong. I am hoping that my body will recover at least some of its strength after chemo ends in January.

In the meantime, I am grateful for gracious strangers who lend a helping hand.

Thanksgiving joy

Here are the leaves I collected on my walk on Tuesday. I am partial to red!

I’m doing so much better since I stopped receiving Oxaliplatin, the drug that caused most of my neuropathy, in my chemo regimen. The side effects from this drug after eight rounds were miserable, and now that I’m off it, they are fading rapidly. I still have other chemo side effects, but none as nasty as the neuropathy.

Today is Thanksgiving, and it is a lovely day. Cliff and the kids are home, snoozing happily upstairs. Most of the Thanksgiving preparation has been done ahead of time with Joanna’s help and the contributions of my kindly friends. We will mosey along getting the rest done today and eat whenever it’s ready!

It’s very peaceful today. I hope you have a delightful Thanksgiving, full of gratitude for the days of your life and for the love surrounding you and within you!

Waiting for results

I had my PET/CT scan yesterday and am awaiting the results. It would be nice to have some good news. I should know on Monday morning.

Today is my dad’s birthday. He is 90 years old! My brother has flown down from Portland to visit our dad and his wife and to celebrate.

I wish I could be there, but I’m supposed to avoid airports and flying. And unfortunately, I don’t have the energy to travel.

But Dad, I love you! Congratulations! Have a wonderful day . . . and a year ahead filled with beauty and happiness!

Sleeping on a slope

Last week I mentioned my persistent, nonproductive cough to my oncologist. We agreed it is probably lingering from the lung surgery in June.

So the oncologist suggests we raise the head of my bed by placing a brick under each leg at the head. “Your husband won’t even notice the slight slant, and it may be enough to improve your cough, which he probably will notice and be grateful for.”

You know how it goes. If one solution is good, doubling it may be better. Cliff gathers enough bricks to start another patio and puts two under each leg at the head of the bed and one brick under each middle leg so as not to stress the bed frame. He is an engineer, after all. Or else he really wants that cough gone.

So now our bed is clearly aimed upward and looks as though it is headed for outer space. It is like our early camping days, when we cluelessly pitched our tent on the only spot available, which happened to be a slope, and we would both slide down the tent floor in our sleep and by morning end up in a heap at the lower edge, wet with condensation and ready to be born through the seam into the outer world.

In the middle of the night, I find myself with feet hanging over the lower edge and my arms grasping for the head of the bed to pull myself upward to a normal sleeping position. My husband is heavier than I am and doesn’t seem to deal with this. But gravity wants me. And it almost claims me, every night.

I would start pulling out the bricks myself, except I can’t lift much right now. My son is in the prime of his life, but he was recently visiting Brooklyn and stepped off an upper porch, falling 3-4 feet onto the sharp spikes of one of their neighborhood wrought iron fences.

So he has lifting restrictions for a while, which is a small price to pay, seeing as how he survived the impalement and all. His sternum was the hero that saved his inner organs. He has little spike mark wounds — and one big one on his sternum – in a line on his chest, which are still healing.

Who designed these friendly (rusty) neighborhood fences anyway?

the iron fence spikes in Brooklyn that Evan fell 3-4' onto, saved by his trusty sternum

 The iron fence spikes in Brooklyn that Evan fell 3-4 feet onto, saved by his trusty sternum

And Cliff is working long hours these days . . . although he just now walked in and said he’d get to it tonight. So perhaps gravity is claiming him as well.

So maybe by the end of today, I will get all three of us somewhat compromised people together and we’ll get the job done and level the sleeping arrangements out a bit. In the meantime, the launchpad remains and the mattress is aimed at outer space if anyone would like to try launching a bed into the unknown.

On another note, today is Joanna’s birthday.  Happy birthday, my darling, darling daughter! We love you and are so very proud of you! When you were born, the nurse wrote on your card, “My name is Joanna and I’m a real joy!” And oh, you are!

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Gravity

One day your world tilts;
gravity no longer pulls you downward.
It propels you into walls, corners,
where you land in a haphazard heap,
wondering which law of physics changed
and didn’t let you know.

Your hair drifts down gently from your head,
settling in graceful curves on the floor.

You grasp counters and corners
to keep yourself upright.

You drop ice trays and
retrieve the scattering cubes
before they melt on the slippery tile.

You take naps and hours disappear.

And yet in all of this
you celebrate life, welcome friends,
laugh, receive comfort, share joy.

Because with every breath
you are a member of this world,
      this magic;
you touch the mystery;
you embrace the deep.

Midway

I’m halfway through chemo – six rounds done, six to go. I should be wrapping chemo up around January 2009.

In the meantime, I am prepping today for a colonoscopy tomorrow. The oncologist told me just because we’ve taken care of one malignant site doesn’t mean there might not be more in there. So tomorrow morning my surgeon will take a good look at my insides again.

I am truly grateful for good health care and for alert physicians. But having a colonoscopy during chemo is a little tough. I am feeling the cumulative effects of chemo now – some loss of balance, shakiness, fatigue, and the ever-present neuropathy in hands and mouth. Today I am fasting and will be drinking the vat of liquid this evening for internal cleansing, which will leave me even shakier.

Oh, and a mammogram on Friday. I know these tests all vitally important. That’s why I’m having them done.

Still . . . all I want to do is curl up in bed and rest, so I will do that this afternoon. Weariness and gratitude coexist here.

Outside my window, the temperature is dropping and the wind is up. Leaves are sailing off the trees like snow.

And now thunder is booming. Lovely.

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A wink in time

Yesterday was Sunday. I woke up exhausted. Managed to read the Sunday paper. Cliff made pancakes for lunch, and we got the dishes cleaned up.

Then I just sat still at the kitchen table, head resting on my hand, and told Cliff I needed to go upstairs and work on some art homework my teacher had assigned. He looked at me and said, “No, you need to rest.”

He helped me upstairs and tucked me into bed, and there I slept for three hours. It was the best three hours ever. I was so tired.

When I finally woke up, Cliff and I put together dinner. Then I moseyed on up to my art studio (aka, my grown daughter’s bedroom) and worked on my art homework.

I will finish the assignment this morning before my IV infusion appointment.

Thank goodness for perceptive spouses who help us set aside our self-imposed schedules and get the rest we need when we need it.

Chemo round six begins tomorrow.

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Embrace

Universal source of love, hold me in your arms and rock me.
Extend my consciousness to the far reaches of time and space.
Connect my heart to every living being on Earth.

Enlarge my embrace to all of humanity.
I hear their moans and grieve with them.
I gather their joys and dance with them.
I sense their silence and sit with them.

Cradle us all in your compassion and your
        incomprehensible love.
                                                   

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